This year my family has had four surgeries, one to fix my youngests teeth, two leg surgeries to correct my eldest sons deformity and one to remove a very large lump from my leg. And later in the year we will find out the timeline for the third leg surgery for my eldest.
So life this year has a little bit crazy, with each surgery there has been recovery, physio appointments and it is all being juggled amongst our everyday life.
Most people who check up on us comment on our crazy life/crappy year/how do we cope etc. However while we have had our ups and downs in general I feel we are managing well. Which made me start to think…is that because this is just the new normal?
At different stages of life I think your “normal” alters. There are things that you never think you would do that just become part of every day life. Think of major milestones in your life and each of them probably altered your normal – first love, moving out of home, getting married, having children there are so many of them. For me I add separating from my husband and getting my sons diagnosis.
And while my new normal is busy, crazy and often exhausting it is also what makes me who I am today. I am stronger, more determined, understand my core values better, and prioritise what is best for my family.
So while I would change some of the reasons why this is my new normal I also try to appreciate the good points of it.
And look forward to the next new normal – who knows what that will bring. Hopefully a little less crazy and a little more me time!!
Last week my boys were at their dads for the week as it was the second week of the school holidays. The house was quiet, the dog was restless and the million jobs I had planned to just didn’t quite get there as I worked too many hours. However not having to do dinner and bedtime routine every night meant that I had more thinking time as well. And one thing I thought about was how easily our life has fallen into a rut. Routine is necessary in my house – single working mum of two children with one having a serious health condition that means constant hospital visits. And sometimes it easier to take easy options than push for changes and listen to complaining and meltdowns. But something had to change – boundaries and comfort zones need to be stretched a little. Changing things in a house that thrives on routine can be like putting a puzzle together. Trying different pieces and connections until something fits.
So when the boys came home I told them every day we were going to do one thing that we either had never done before or had not done for a long time. Sometimes it would be big, other times small but it would be every day. It could be to do with what we eat, watch, play or where we go. I was worried about how they would take it but should of known their first suggestions would be a trip to Queensland (where we had gone two and a half years ago) and to America where they have never been. So the first few days will be my choice.
So we are now three days in to our something new every day and it is going really well. We are connecting more, trying new things and they are feeling really positive about it. And what have we done?
Day one. We made pita bread chips to have with dip. Started simple but they loved them, ate them straight away and want to do it again
Day two. Started watching a kids series none of us had seen before on Netflix which was based on the movie Turbo. We all sat and watched it together, my eldest put down his IPod and we had some laughs (they wanted to watch another episode today)
Day three. Played a new card game I had bought called Mars Needs Heroes. It was easy to play and lots of fun so we ended up playing two games of it.
I am certainly not expecting every day to go this well, especially when I start trying different foods. But at the moment they are loving the idea and I am loving stretching our boundaries and finding some bright moments in each day.
As part of my eldest sons treatment plan he is currently going through serial casting. This is to try and correct the positioning of his drop foot and loosen up some of the muscles that are not working as they should. So basically it is to treat a symptom of the NF2 not the cause.
For serial casting he goes into the Royal Children’s Hospital once a week to have one cast removed and another put on. The idea behind this process is to slowly stretch and reposition his foot.
The process started last Thursday when he had the first cast put on and will continue for at least four weeks. As there are no broken bones or injuries he can walk on the cast but with the current positioning that is not possible and therefore he is on crutches.
One week into the process what have I learnt?
- The crutches that I always thought were super cool and wanted when I was at primary school are not (for parent or child) when they are your reality.
- Everything takes longer and your patience is tested when your child can’t do things as quickly as you want.
- You don’t notice how many little things a child of almost nine can do for themselves until you have to help them.
- You discover that the bath is a lot deeper than you think it is when someone has to sit down while standing on one leg and hanging the other over the edge of the bed.
- And finally as a parent you never get it right when helping a frustrated, grumpy child – you don’t let them try and do things/you don’t help them enough or you need to get something to keep their bare toes warm/why would they want a sock over the cast.
So at this stage of the process I feel very sorry for him and want to avoid him all at the same time. One week down and three to four to go……hopefully it works and the grumpiness, from both of us, is worth it.
Last week was full of big and small incidents that left me drained and emotional. By Friday afternoon one small incident was enough to tip my emotional bucket and leave me in tears. And while the weekend (and my mood) improved I knew that with the boys heading to their dads for a week I was up for another tough week.
Don’t get me wrong, I enjoy the quiet and having some time to myself after a couple of hours it is to quiet and too much time.
However knowing a week away from the boys is tough, and that I was already in a low spot I decided I needed to try and position myself for a good week as much as possible.
Step one: Sunday (last day with the boy) had to be about forgetting the terrible weather and messy house and more about having fun and building memories. Ten pin bowling followed by arcade games and lunch fit the bill perfectly.
Step two: get back to taking food to work so that I save money and eat healthier.
Step three: go shopping for healthy snacks and dinner ingredients. Then add a packet of Tim Tams – just because thy are my favourite and without kids I could eat all of them without hiding.
Step four: cook a huge batch of chickpea and vegetable curry to cover dinners for the next few days as having the motivation to cook healthy dinners for one can be difficult when I get home from work. Was very happy with how it turned out. There is something about slow cooking, curry and winter that all just goes together.
Next steps: fingers crossed for better weather so I can get out for walks. Weatherman is not filing me with confidence – after all it is Melbourne and winter.
And the rest is unknown at this stage.
I am a light sleeper.
I always have been and over the years it has got worse. Having kids obviously has a big impact on sleep, add to that a separation, child with chronic health issues and being an over thinker/worrier and an eight hour sleep is a pipe dream.
For some reason 3.00am seems to be the time I often wake during the night and then is when the brain and thoughts start ticking away. Sometimes it is a particular topic based on events occurring in my life at the time but often it is very random.
I decided to keep track of the weird places my mind goes at this time of night over the last few nights and share them for your enjoyment. Be warned in the light of day some of this does not make sense.
- How do I fill the gaps in the ceiling in the back room of the house without the gap filler falling out? (I am currently renovating my house)
- If I want to reduce screen time in my house what ratio should I reduce it by before it effects the amount of peace in the house?
- How do I best help my eldest son who suffers a lot with anxiety that is increasing due to his health issues?
- There is a charity gala for the NF (the genetic disorder my son has) – if I go on my own will it be a way to meet people or make me feel more lonely when they are dancing and I’m alone?
- Where do I find an 80s outfit for my girls night out in a couple of weeks?
- How do I get my kids to try more food especially healthy food and why do kids hate green food?
- What should I bake this weekend?
- Do I need a hobby or to do a course and when do I have time?
- If they say you should work in your passion to be happy then what do I do if I don’t know my passion?
- I need to start a business that will allow me to not have to get my kids up at 6am and be gone for 12 hours a day…….what is that business? (Many weird and wonderful thoughts on businesses at 3am)
- Did I give tattslotto the correct details as no one has rung me yet?
No wonder there isn’t much sleep happening – who has time. Luckily having a child that didn’t sleep for his first 11 months gave me a lot of practise on surviving on little to no sleep.
Today I have decided to do a review on a children’s book. Now I haven’t read the entire book but feel I can review this through the eyes of my children.
Currently in our house we are trying to reduce the use of screens. We have recognised we are becoming a little too reliant on them but for my children in particular, especially the eldest, it is becoming the constant go to. So as a result we are increasing screen free time. To assist with this I have been buying more books for the boys and trying to find ones that are a little different or focus on topics the boys are interested in.
One that I bought for my 8 year old is called “A funny thing happened to Simon Sidebottom” by P.Crumble. I was purchasing some other books and this one was at the counter. It is the first in what I hope is going to be a series as it has been a big hit. This book is a choose your own adventure but unlike the ones that were around when I was younger this book has quirky images and is very funny with humour aimed exactly at my boys (think gross jokes about bodily functions and dangerous stunts). Even the font used in the book is fun and easy to read. My boys are seven and eight and I highly recommend it for children in this age range. In the four days since he has had the book I believe he has read every version of the story at least twice.
Tonight in our quest for less screen time the three of us were making pizzas for dinner together. As they were cooking the boys came up with a plan to read the book aloud and at each decision point we took it in turns to decide which way to go. No screens and reading as a family happily at my sons choice – this book is a big winner for me and if there is a second I will definitely be buying it.
My boys went to their dads last night for a couple of nights. I find that when they are gone I usually pack my to do list full. This is for a few reasons. Firstly it is much quicker to get things done when it is just me, secondly the house is quiet and empty without two boisterous boys running around, and finally I hate feeling that I have wasted my time alone when it gets to the end of the weekend.
Sometimes being on my own is very lonely and other days it is about being alone and enjoying my space and my time. I have learnt that there is a big difference between alone and loneliness over the last few months.
So today was another jam-packed day and this one especially so as it is my youngest’s birthday on Monday. Tomorrow night he is having some friends for a sleepover so while I was very busy preparing for his party I was also conscious of enjoying some peace before the craziness of 6 and 7-year-old boys.
So in the business of the day I try to add some elements that are for me and often it is the simple things that are hard to enjoy when busy being a Mum. Today’s simple elements of the day that made me pause and appreciate the day were:
- Making avocado and poached eggs on toast for breakfast and sitting down for a while to enjoy it with a cup of tea.
- Playing music that was all my choice and singing along.
- Sitting down with dinner and a glass of wine to watch something on Netflix.
So in the middle of a crazy weekend I found time to enjoy the peace. lets call it the calm before the storm.