Last Sunday I ran through St Kilda in my underwear.
Possibly I should add more details to this story!
Running through St Kilda in my underwear was for the Cupids Undie Run which is a fundraiser for the Children’s Tumour Foundation of Australia. This foundation supports families impacted by Neurofibromatosis (NF). This is the disorder my eldest son has – he has NF2 which is the rarer form.
The fundraiser raises much needed funds for treatment, family support and research.
Many people have asked if I was embarrassed to run in my undies or said how brave I was. What they don’t understand is that as a parent you feel helpless when you can’t help or fix what is wrong with your child. So the thing I can do is help with funds. And if embarrassing myself for a short time helps raise funds then I am in. This is the second year I have done this and I will continue every year until a cure is found.
Bring on the embarrassment – I am going bigger and better every year. Because I would do anything to take away the stress and pain my beautiful boy suffers.
When did the definition of strong alter to meaning you don’t need help?
I am proud to be a strong person. I have had many ups and downs in life like the rest of us, and for the last few years it feels the downs are certainly outweighing the ups. However, I pride myself that I do not give up. I have a bad day and then I pick myself up and do what needs to be done. I have two young boys that count on me and I am not afraid of hard work. I also hope that I am a good example for my sons and my nieces in showing that you can make things happen for yourself. They may not appreciate it now but I think (hope?) they will when they are older.
Last week I had lunch with a friend at work who I only catch up with about every six months. She made a comment that I have heard many times in the last couple of years about how strong I am and how “I’ve got this”. Then she made a further comment “you have always been strong but you let the men in your life make you weak”. It is certainly something I had thought about before. And I am determined that any future relationships will be different. My strength and character should not change because it might upset the men in my life.
It seems though that being strong equates to others as I can do it alone, no help required. And some days that isn’t so. Not having a support system in place gets tough. Days like today finding me sitting in the car after dropping the boys at before school care and yelling/tearing up at my frustration at doing it all alone. At the fact that young children can change well laid plans in a heartbeat – fights over what to wear, phone calls from the school over sick children, arguments over eating dinner.
I don’t want to change my strength or determination, I will continue to be a role model for my kids and I won’t pretend to be weak again……but sometimes it would be nice to share the load. Or at least have someone to convince my kids to eat what I cooked.
I am a light sleeper.
I always have been and over the years it has got worse. Having kids obviously has a big impact on sleep, add to that a separation, child with chronic health issues and being an over thinker/worrier and an eight hour sleep is a pipe dream.
For some reason 3.00am seems to be the time I often wake during the night and then is when the brain and thoughts start ticking away. Sometimes it is a particular topic based on events occurring in my life at the time but often it is very random.
I decided to keep track of the weird places my mind goes at this time of night over the last few nights and share them for your enjoyment. Be warned in the light of day some of this does not make sense.
- How do I fill the gaps in the ceiling in the back room of the house without the gap filler falling out? (I am currently renovating my house)
- If I want to reduce screen time in my house what ratio should I reduce it by before it effects the amount of peace in the house?
- How do I best help my eldest son who suffers a lot with anxiety that is increasing due to his health issues?
- There is a charity gala for the NF (the genetic disorder my son has) – if I go on my own will it be a way to meet people or make me feel more lonely when they are dancing and I’m alone?
- Where do I find an 80s outfit for my girls night out in a couple of weeks?
- How do I get my kids to try more food especially healthy food and why do kids hate green food?
- What should I bake this weekend?
- Do I need a hobby or to do a course and when do I have time?
- If they say you should work in your passion to be happy then what do I do if I don’t know my passion?
- I need to start a business that will allow me to not have to get my kids up at 6am and be gone for 12 hours a day…….what is that business? (Many weird and wonderful thoughts on businesses at 3am)
- Did I give tattslotto the correct details as no one has rung me yet?
No wonder there isn’t much sleep happening – who has time. Luckily having a child that didn’t sleep for his first 11 months gave me a lot of practise on surviving on little to no sleep.
Those who read my last post would now that after I had some surgery done my parents had come to stay to help me out for a few weeks as I was very limited in what I could do. And that my children were struggling a bit with the change of routine.
Today after three and a half weeks my parents have gone home. I have greatly appreciated the help they have provided as well as enjoying the break from being the only cook in the house. However today as I worked from home in a silent house I realised how quickly I have adapted to being the only adult in the house. To being able to set things up how I want them, run the house in the way that works for me and my boys, and not be judged for my crazy OCD like moments. My mum was shocked that all of my pegs are one colour and that my ensuite vanity is always set up with everything in exactly the same place. Surely I am not the only one with odd quirks!! Thank goodness I didn’t mention I need the TV volume to be on an even number.
I have been separated for two years next month and while it was strange at first after being married for 12 and a half years I have very quickly adapted to being on my own. We have set routines that work for the three of us, our life is crazy and busy but we all get each other. We drive each other nuts one moment, and the next minute are having a dance party in the kitchen. And most importantly have a house full of cuddles, laughter, fun and forgiveness.
So this morning when I got home from dropping the boys off at school I made a cup of tea and took ten minutes to sit in silence on my own for the first time in weeks before starting work.
And how did the boys and I spend our first night back to just the three of us? Eating bowls of pasta in the lounge room while we watched TV before reading books together in our pajamas – Perfect!!
This morning I woke up with the tail end of a migraine that started yesterday. So I explained multiple times to my 6 and 8 year old about the need for them to be quieter this morning.
This proved impossible for my 6 year old who never stops talking. To prove I am not exaggerating his swimming teacher told me the other day that he was talking to himself the whole time he was doing backstroke (hope he manages to stop when doing freestyle!)
So tonight I put him to bed and as usual he pops out just as I sit down to relax. I prepare myself for the usual – I need the toilet/a drink/a cuddle/a note about all the things I want to do tomorrow. Nothing prepared me for what came out of his mouth though. In his words “Mum could you please try to keep it down and be quiet as I think I am getting an ear ache. “