As part of my eldest sons treatment plan he is currently going through serial casting. This is to try and correct the positioning of his drop foot and loosen up some of the muscles that are not working as they should. So basically it is to treat a symptom of the NF2 not the cause.
For serial casting he goes into the Royal Children’s Hospital once a week to have one cast removed and another put on. The idea behind this process is to slowly stretch and reposition his foot.
The process started last Thursday when he had the first cast put on and will continue for at least four weeks. As there are no broken bones or injuries he can walk on the cast but with the current positioning that is not possible and therefore he is on crutches.
One week into the process what have I learnt?
- The crutches that I always thought were super cool and wanted when I was at primary school are not (for parent or child) when they are your reality.
- Everything takes longer and your patience is tested when your child can’t do things as quickly as you want.
- You don’t notice how many little things a child of almost nine can do for themselves until you have to help them.
- You discover that the bath is a lot deeper than you think it is when someone has to sit down while standing on one leg and hanging the other over the edge of the bed.
- And finally as a parent you never get it right when helping a frustrated, grumpy child – you don’t let them try and do things/you don’t help them enough or you need to get something to keep their bare toes warm/why would they want a sock over the cast.
So at this stage of the process I feel very sorry for him and want to avoid him all at the same time. One week down and three to four to go……hopefully it works and the grumpiness, from both of us, is worth it.